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Chronic Boss
Chronic Boss Community

I started the Chronic Boss community to create a space for people living with chronic conditions to show off that they aren’t just surviving, but thriving. That even though you may live with one or more chronic conditions, there are still endless opportunities to grow, achieve, pursue your passion, and be a boss! often think of the millions of young women when they are first diagnosed with an autoimmune condition. When they are told they will carry this diagnosis with them for the rest of their life. It’s terrifying. It’s devastating. It’s isolating. Questions race through your mind “Will I be able to run that marathon, start my own company, fall in love, have children, pursue my passion…” Fill in the blank with whatever matters to you.

I want these women to stumble upon #ChronicBoss and see how truly powerful those of us living with chronic conditions are. We are strong and resilient. We are patient and kind. We are leaders and change-makers. We are CHRONIC BOSSES.

I hope you will join me in using #ChronicBoss to show up and show off! Let’s own the narrative and tell the world just how truly remarkable us boss ladies living with chronic conditions are!

Interested in joining the Chronic Boss Community? Get in touch!

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Chronic Boss Scholarship

The Chronic Boss Scholarship program seeks to reward women living with autoimmune diseases who have persevered and succeeded. Women who have an entrepreneurial spirit, whether that is in launching an initiative, a campaign, a startup, a blog, a club, a fundraiser, or other endeavor.

These women are Chronic Bosses. Powerful, strong, and resilient. Kind and empathetic. Leaders and change-makers shaping our future.

Every year, Patient Authentic will award $1,000 scholarships to ten outstanding Chronic Bosses!

Learn more about the 2022 winners here.

Applications for this cycle are now closed. Applications will re-open at the end of 2022 at bold.org.

Chronic Boss Resources

I only wish that when I was first diagnosed with multiple autoimmune diseases, I had someone to point me in the direction of all the resources that exist out there for patients and caregivers. This is by no means a comprehensive list but here are a few I've found to be helpful  to get you started!

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Dr. Robert Phillips

Dr. Phillips and his team specialize in helping patients cope with chronic illness. His practice sees patients via telemedicine and he has a series of books published on coping with chronic illness including Newly Diagnosed? Now What? 153 Strategies to Help You Take Action and Cope After Your Medical Diagnosis,

ARNet

The Autoimmune Research Network (ARNet) is an autoimmune disease patient registry that empowers patients by facilitating their participation in research and clinical trials. By joining ARNet and sharing your experiences, you’re giving researchers access to key data that will help make critical discoveries.

Clara Health

Clara helps walk you through the clinical trials process by recommending trials that could be a fit for you, and helping you take steps to enroll.

Navigating Step Therapy

Is your insurance forcing you to try less expensive medications before you can access the treatment your doctor wants you to be on? Use this guide to download resources like appeals letters so that you can get the treatment you need faster.

Coverage Rights

Site to help you understand your health insurance rights.

HealthSherpa

Site to help you navigate selecting an insurance plan. Understand your options, get a recommendation, and enroll with ease.

Better

Better makes it simple for anyone to get back the money their health insurance owes them. Because every minute you don’t have to spend on the phone with your health insurance company is a minute you can focus on what really matters.

RxAssist

Many pharmaceutical companies that make medications have Patient Assistance Programs to help you pay for your meds. You can use this database to search for assistance programs. (My biologic assistance program has helped get my meds down to $5 an injection!

The PAN Foundation

The PAN Foundation helps underinsured people with life-threatening, chronic and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability.

Needy Meds

NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can't afford medications and healthcare costs.

GoodRx

GoodRx provides prices and discounts for prescription drugs to save you up to 80%.

Your rights & affording treatment

IBD advocate Alison shares tips and tricks she's learned to help manage the administrative and financial burdens of chronic illness.